#1
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anyone deal with mitral valve issues (leaking/reflux)
curious of folks experience dealing with this -- treatment, longer term stuff, cycling/fitness impacts, etc.
asking for a friend... ;-) |
#2
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Ask 'Gasman', he's a anesthesiologist MD..he has helped me a lot going thru afib, ablation and cardioversion...better now, BTW..been a long month but give gasman a shot, he's a mod also.
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Chisholm's Custom Wheels Qui Si Parla Campagnolo |
#3
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My mom had a really badly leaking mitral valve and a fellow forum member recommended Dr David Adams at Mt Sinai in NY. He said he was the Richard Sachs of Mitral valve replacements.
Something happened, and she couldnt go in for the open heart surgery, so Dr Adams recommended Dr Tang, also at Mt Sinai to do a Mitral valve repair which is minimally invasive. They basically put these new things called Mitraclips around the leak. My moms was so bad that she needed two of these clips; which Dr Tang was incredibly psyched that was he was able to do. I guess its never been done before, at least by him. She's had a really weak heart this entire time. Docs say that its the equivalent of a 95 year old person. Shes turning 60 this year. Shes been feeling really weak lately so she just went back to Tang to get checked out and the clips are still in place and holding up, so her heart is just failing and now she is needing to get a whole transplant. If it were me in detroit, id 100% go to the Cleveland Clinic. #1 for heart surgery in the country, i believe. Good luck and let me know if you have any question. Im not an expert at all, but just have some insight with what my mom is going through. |
#4
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Quote:
--a pulmonary/ICU MD |
#5
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Quote:
Quote:
Last edited by wallymann; 08-10-2020 at 05:25 PM. |
#6
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My dad had this repair done at Cleveland Clinic. My mom said it was the best nurse staff she had ever experienced. He was home in less than a week and pretty much fully recovered in a month.
He had the connective tissue on the valve repaired with carbon fiber I think? But unfortunately his leakage has gotten worse from when it was first done 3-4 years ago...I think this is always a possibility. My takeaway from seeing my dad (a meticulous person) is to go get as many evaluations as possible. Fly / drive to places to get evaluated in as much as possible during this time. See doctors in person. Do your research and you will have a better outcome. |
#7
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Quote:
You can't really take any one person's experience and generalize it as there are too many variables. Age, co-morbidities, valve pathology, length of illness, cause of illness, etc, etc.. Your friend needs to see a good cardiologist. The Cleveland Clinic is certainly a good place to start.
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Life is short-enjoy every day. |
#8
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I didn't know any of your friends had hearts, news to me.
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This foot tastes terrible! |
#9
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I believe gore-tex is what they use. thx for sharing, sorry to hear about your father's struggles. :-/
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