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View Full Version : wheat/gluten allergy and fitness/heart rate


goldyjackson
09-01-2007, 07:20 PM
I usually don't start these random threads, but I've had such an important experience lately that I thought I'd share it with you people (who have helped me so much in my lurking ways). :beer:

First some background. I've been active in aerobic sports for at least the last 16 years (I'm 34 right now). In my college days I was on the crew team, and it was after a back injury in my senior year that I started road biking. For a number of reasons, I only stuck with it for a couple of years. I picked up squash, loved it and made that my primary activity. Anyway, I've been training with a heart rate monitor for at least the last 12 years. My resting hr in college was about 48, and it's been between 53 and 58 for the past few years. I've always done intervals, I've always "trained seriously" even though I couldn't really tell you why I've done this.

I picked up road biking again about two years ago. I'm faster than I used to be, but mostly because I know how to push myself more consistently. I ride with a couple of strong riders reagurlary, and since I hovered around 173 lbs (for 5'8"--I lift weights for squash, and I've been this weight since college, pretty much consistently, even though I've tried several times to lose 10 lbs or so), I'm not the best hill climber even though I like it. No matter how well I trained, I didn't really get much faster, and my speed at a certain heart rate remained relatively the same. I am VERY active. I'm doing something, either lifting weights, playing squash, or riding the bike six days a week, without fail.

Cut to the punchline: a trusted friend of mine (who's a very accomplished trainer) convinced me to try giving up gluten for a while to see if that helped. I can't tell you the difference. In two months, I've:

gone from 173-162 lbs
resting hr has gone down about 10 bpm
hr at whatever speed has gone down about 10-15 bpm

Moreover, I have a standard hill I use to judge how fit I am. It is a steady 1.2 mile climb. My previous best time within the last year was 6:01, but all of my times were between 6:01 and 6:20. My hr at this exertion is between 179-185 (my max on a bike is 193). Today I did it in 5:34. I know some of it is the weight I've lost, but I'm amazed at the gains I've made with diet.

I ate well before, too. I've just cut out gluten pretty much. I still have some carbs, just now wheat, etc. The thing is, I never would have known. I had MILD symptoms. Nothing really extreme.

This above could fall in the "sharing too much" category, but at the same time, I figured it was really important to me, so someone out there might be interested. By the way, I've done a bit of poking around and one of the unofficial ways to see if you are sensitive to gluten is to take your hr before eating it and for the first hour after eating it...

Has anyone else even heard something similar?

Flat Out
09-01-2007, 08:14 PM
I guess I'm a little confused. Have you been diagnosed by a doctor as having Celiac?

goldyjackson
09-01-2007, 08:42 PM
Not by a doctor, but I've noticed for years that I can't really tolerate beer without having stomach problems. Recently, I cut out breads, on the advice of this trainer. No big deal, but from the response of my body, I'm clearly on to something. I just was surprised that it could be so linked to a cardiovascular respone, if that makes sense. I've heard, too, that the tests for gluten intolerance are not very accurate. Some people just have to try elimination diets, which is what I've done.

Flat Out
09-01-2007, 10:07 PM
There's a newer blood test that will tell you if you have the gene for Celiac Disease. If it's negative you will never develop it - if it's positive you can take it from there if you like.

If you are going gluten free there are an amazing amount of food products out there now, even compared to a few years ago.

gt6267a
09-01-2007, 10:08 PM
to feel tired or an inability to exercise hard is common amongst celiac's who still eat wheat. until a few years ago, i spent my day to day life on the verge of taking a nap.

some celiac's have a very strong reaction to gluten and avoid it like the plague. my reaction is more mild, especially now that i have not eaten wheat consistently in years. that said, if i go out and eat pizza, i am tired that day and maybe the next. i think the mild cases are actually harder to diagnose and make the dietary sacrifices.

one bit that strikes me as odd ... you lost weight. it is my understanding that most celiacs put on a few pounds once they cut wheat out of their diet. the thinking is that once the vili (sp) are repaired the body absorbs more nutrients and stores them.

in the end, i would go to a GI and talk about this. as you learn more and more about cutting gluten out of your diet, you will learn it is almost everywhere and it sucks to avoid it. best to get to the heart of the problem. maybe it is and maybe is not gluten ...

that said, my personal unofficial test. without eating anything else for a few hours, eat 3-4 slabs of graham cracker. if you wish you were dead and could take on the nickname DJ Gasmaster, you are probably looking in the right area.

Ginger
09-02-2007, 12:01 AM
If you get tested with the normal celiac tests after you've already cut gluten out of your diet, they will come back negative or inconclusive. And of course...gluten allergy is different than celiac sprue (or so I'm told by doctor types). Same results with the diet though...

And gluten is in so many products, just cutting out the obvious carbs is not actually removing gluten from your diet. Hint for the day: Anything that says: "Natural Flavors" in the ingredient list probably contains gluten. That said, if you really have cut gluten totally out of your diet and haven't fallen back on the gluten free (and often high fat) varieties of breads and cookies, I can see how you probably have lost weight.

Unlike you Goldy, I gained weight after I cut out the gluten. A bit like I'd been starving for many years, as in a way as a celiac...I was.

I came across a really tasty gluten free non-graham graham cracker recipe over on gluten.net ...yeah, on topic, but not.
Recipe (http://www.gluten.net/recipes/index.php?cmd=6&recid=115)

Good luck with your experiments! I hope you've found something that works for you. There are people who argue that we shouldn't eat wheat or highly processed flours as our systems really haven't had the time to adjust to them, we haven't been milling flour for that long in relationship to the amount of time it takes to adjust to that sort of diet change.

Oh...and it's amazing what sort of junk falls into diets of people who pay attention, yet are considered healthy eaters. It only really cleans up when you have to read every ingredient...that doesn't even help some people.

Ginger (who found some gluten on her drive home and has been very sleepy for two days.... )

Oh, Yes. My resting HR is a little lower than it was when I ate gluten, and my blood pressure is a touch lower too. (This is good, my family tends to high blood pressure)

Flat Out
09-02-2007, 07:46 AM
that said, my personal unofficial test. without eating anything else for a few hours, eat 3-4 slabs of graham cracker. if you wish you were dead and could take on the nickname DJ Gasmaster, you are probably looking in the right area.

People. For the love of all things holy. Please see a specialist if you think you may have this and don't just guess on your own. The damage you can do to your body later in life if you are a Celiac and continue to eat gluten is FAR worse than just feeling crappy and tired once in a while.

My $.02

gt6267a
09-02-2007, 08:04 AM
People. For the love of all things holy. Please see a specialist if you think you may have this and don't just guess on your own. The damage you can do to your body later in life if you are a Celiac and continue to eat gluten is FAR worse than just feeling crappy and tired once in a while.

My $.02

i agree. if you notice from my post, i recommend seeing a doctor ... the graham cracker bit is a joke. that said, not certain if this is just me, but graham crackers get to me in a way that a slice of bread or pizza or ... don't.

Ginger
09-02-2007, 09:16 AM
Please see a specialist if you think you may have this and don't just guess on your own. The damage you can do to your body later in life if you are a Celiac and continue to eat gluten is FAR worse than just feeling crappy and tired once in a while.

My $.02

Yep, and go back to eating wheat for a couple weeks or a month before you get tested if you've taken yourself off of it. That sounds bad if you're celiac, and it is. But other than the gene test, if you aren't eating wheat, you aren't going to demonstrate symptoms as notably as if you were.
How do I know? My gut was such a mess I wasn't eating anything but mashed potatoes, fruit, a little plain meat, and yogurt for a couple months before my initial blood test, and it only came back with a few markers. Then the biopsy came back with damaged villi but not the classic celiac damage. But...between the two I was diagnosed celiac and now that I've been gluten free for 5 years (the first several years you don't realize everything that has gluten in it...)

A note on Speltz. (Canada lists speltz as "safe" for celiacs) Some celiacs can eat speltz without external symptoms...but that doesn't mean it's not doing internal damage. I ate speltz when I was first diagnosed, but now that I'm very familiar with my gluten reaction, I realize that I have an issue with that as well.


gt...it's just you. I can't eat wheat pizza, but before diagnosis, graham crackers used to be one of those things I ate when my gut was a mess and I didn't know what was wrong...
I think most celiacs have some sort of preparation that they're more sensitive to.

gt6267a
09-02-2007, 09:40 AM
To double up on what ginger said, I was wheat free for about 1.5 yrs and then did the biopsy and my gut looked fine. It’s nice to know the body repairs itself, but treating yourself and then going to the doctor will make a diagnosis more difficult. If you have been gluten free for a while, I think the advice is to eat wheat for 6 months before testing, but I would talk to a GI before making a lot of changes. Flipping around on this one without guidance is brave but maybe not smart.

Just to clarify in case my writing was not clear, I do have a reaction to pizza, bagels … but graham crackers hate me the most.

John H.
09-02-2007, 10:21 AM
Your results may vary.
I tried going wheat free for about 3 months on the advise of a friend who did the same and reported that he felt great. For me, it didn't make a difference.
I did However discover that I really like rice bread!